In Australia and overseas, events are being organised for Worldwide LAM Awareness Day, 01 June.
LAM Australia’s double objective is to inform people about LAM and to fund research to find better treatments and ultimately, a cure for this rare and devastating disease.
Help fund research collaboration by the Garvan & Woolcock Institutes.
TOGETHER WE CAN CONQUER LAM
LAM Australia is now fundraising for the biggest LAM research projects to be undertaken in Australia. Involving genomic studies, they aim to identify and switch off the genetic code that causes LAM. Research offers insights likely to hasten correct diagnosis and earlier, more effective treatments.
Tax deductible donations over $2 can be made via the GiveEasy platform.
Walk to raise awareness of lymphangioleiomyomatosis (LAM)
In SYDNEY on Sunday 29 May LAM Australia will mark Worldwide LAM Awareness Day with a short harbourside walk starting at 3 pm, followed by coffee and an update on developments in treating LAM. Participants are meeting at the Ministry of Coffee across from Rose Bay Ferry Wharf on the western side of Lyne Park. The meeting place is accessible by ferry or bus, car, bike, or even on foot. The event will finish at 4:30pm.
WWLA Day events are also being organised in Brisbane, Melbourne and Western Australia. For details email email@example.com
Lymphangioleiomyomatosis (LAM)is a rare lung disease which occurs almost exclusively in women. Affecting the lungs mainly, LAM causes excessive growth of smooth muscle cells which progressively destroy lung tissue and diminish lung function. Although research is ongoing, there is currently no cure for LAM. For some patients lung transplantation is the only means of survival. However, the disease is being slowed by drugs derived from rapamycin.
01 June was declared Worldwide LAM Awareness Day by the Worldwide LAM Patient Coalition in 2011.